Rinnie in August

Hello all,

We are home again. Rinnie just completed her last treatment before school starts on the 12th. She is doing well. The doctor is pleased with her progress.

She is very much looking forward to school. We don’t yet know how school will work out since Rinnie can not yet sit down, but we have a meeting with the teachers and the director of the school on Friday, and I’m sure we can work everything out in a mutually beneficial way. I figure I can make her a mat to lay down on, and the classroom can be configured so that she can see the board. She is a good student, and as long as she is learning, it shouldn’t matter how she is positioned. If she can not manage it, I’m sure that classmates can help her with transporting the mat from class to class.

Her school is a charter school, and it is my understanding that they get their funding based on the attendance for the first month of school. She will do her best to be there every day, all day. We do have another appointment in 2 weeks, which will require that she miss one day of school. Being my optimistic self, I am sure that everything will work out just fine. I would be happy to keep her home (I home schooled her brother for 3 years through his middle school) but it is important to her to go. I support her in that decision and will do everything in my power to see that she can be there.

Rinnie’s mission for the next 2 weeks is to be as active as she can, sleep well and to eat a healthy diet, all to allow her body to continue to thrive. The toughest part of that is the healthy diet. Except for when we are traveling, I have started giving her chores to do again. She is back to doing one chore every day, like emptying the dishwasher, cleaning the bathroom, sweeping the floor and walking the dog. Perhaps the most therapeutic of those chores is the walking the dog one! For both of them! Without the physical activity, she is not tired enough at bedtime and can not sleep. Her brother has loaned her his Wii and the Wii Fit game. We have enjoyed playing with it and plan on doing some of that every day. Rinnie has gotten in the habit of reading till very late at night and sleeping in. (She has finally gotten interested in the Harry Potter books.) Tomorrow I plan to start our usual “week before school starts” routine of going to bed earlier each night so that it’s not such a big shock to start getting up early for school! It won’t be quite a week, but we just got home Wednesday night.

I am so grateful for our community and your support. Thank you!

Pam

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